Callie's Heart surgery went well today. The surgeons were very happy with the procedure. She was the first of 4 cases this week. The Milwaukee team comes to Marshfield for 1 week every 2 months. She was brought back around 8am. The actual surgery was about 30-60 minutes however all the prep and closing is what takes the time. They have to do an echo (heart ultrasound) before and after the surgery to get a good baseline. They also placed a chest tube for the blood in the cavity to drain alone with pacer wires. These are little wires they will pull before we go home. If they need to change the pace her heart is beating they can hook the wires up to a little device to change it. We were able to see here around 2pm. I always hate the first few hours out of surgery. They decided to leave the intubation tube in over night to help her breath. This means they need to keep her sedated. They have to figure out what the right amount of medication is to keep her sedated yet not too deep. It is always hard while she is trying to fight to wake up and is choking and coughing on the tube. By 4 they had it all figured out.
They have been watching her very closely this evening. Her blood pressure kept creeping down little by little. It is always hard trying to figure out if it is the medication, low fluid, heart rate or who know what? They gave her some extra fluid which helped, but did not completely do the trick. The surgeon just happened to be on the floor so he also came in. When she came out of surgery her heart rate was around 130. It had dropped to 113. They decided to hook up the pacer wires to help increase her heart rate back up to 130. She will stay hooked up until tomorrow. Her blood pressure also increased with the change in pace so that was all good. The PICU doctor explained it to me which really helped. He did mention this is the exact reason they put the pacer wires in. It is not uncommon to need to use them. Callie's body is getting used to her "new" heart along with the extra stress it just went through.
Also, Callie's hemoglobin has slowly been decreasing through out the day. Ideally they would like it between 10-12. She was at 8 so they decided to give her some blood. Thank you to all the people that are always donating blood. This is the second surgery in 3 months Callie has needed blood.
As I sit her and reflect on the day I am glad to say this day is almost over. I have learned so much more about a heart than I ever thought I would. Some days I wish I was a nurse just so I would know what all of this means. Other days I am so grateful I am not as it would just add worry. Thankfully we have had a great team of doctors and nurses to constantly answer "What does that mean?" I must sound like a broken record today. She really is doing well considering everything she has been through.
Tomorrow they will most likely pull Callie's breathing tube and she will lose some of the IV lines going into her body. She currently has 4 different access points to her body with 14 lines going into her. Slowly those will decrease. Some are heart medications, others are fluids, antibiotics, blood and some that I really have no idea.
As soon as she is feeling better I will post some pictures. I do not want to overwhelm any one with all the lines so I will not post any right now. Please say an extra prayer for healing and strength. For now I am going to try and get some rest among the beeps.
Monday, January 7, 2013
Heart Surgey
Callie is having heart surgery today. This is the one surgery I prayed that neither of the kids would ever have. There is just something that scares me about surgery on the heart. Thankfully all of the doctors have assured me this is a "common" heart surgery. It just kills me to know my baby will have yet another scar. She has a wonderful team taking good care of her. We pray for a speedy recovery and lots of strength for the nurses and doctors taking care of her. We will be at the hospital for 3-6 days assuming all goes as planned. I will facebook and blog as we have updates. Please continue to pray for our family and the team taking care of Callie.
Zak is at home with the nurses. He is back to school today. He will be missing his sister these few days she is gone, but he may also enjoy some quiet time with out be climbed on :)
Zak is at home with the nurses. He is back to school today. He will be missing his sister these few days she is gone, but he may also enjoy some quiet time with out be climbed on :)
Friday, January 4, 2013
A Reflection of 2012
As I sit here and reflect on 2012 I cannot help but be so grateful how far the kids have come despite all the bumps in the road medically. We have an amazing support around us of Family, Friends, Nurses, Doctors, Therapists, Teachers and the list goes on. We could not have gotten through 2012 without each and every person.
In February Callie underwent tonsil and adenoid removal. We also asked for one of her ear tubes to come out as she was having issues along with a nasal scope. We just felt she was not breathing through her nose correctly. The surgery went well, however it did result in a septic blood infection which meant we had to give her IV antibiotics. This was our first treatment of IV meds at home. We also learned her nose was not open and were referred to other doctors. Getting to the correct doctor became a challenge and it was not until July when we connected with the correct person. After that appointment it was September when we got in for a second opinion. Although we still had not got anywhere on her nose all the tests that were ran resulted in a new finding. Her brain was growing, however her skull was not. It was 1 complete fused bone. She would need to have surgery on her skull to make it bigger before doing anything else. In October she underwent her first skull surgery along with neck surgery to remove a small bone. The surgery once again went well, however ended up in a terrible infection at the incision site of her neck. We were right back to IV antibiotics at home. This time it was not so simple. The line broke twice and we finally took it out and put her on oral antibiotics. This resulted in an allergic reaction to a medication she had been on many times in the past. Since the surgery she has been amazing. She is so happy, loves to crawl all over and look for her brother. When he is at school she crawls to his bedroom at the end of the hall to look for him, only to find he is not there. It is so much fun just to watch her move and smile. I truly cannot get enough of it. When I lay on the floor she loves to lay on my head and give me kisses, which is more like a big slobber, but it is so cute when it is your own child. I am just so amazed each and every day when that surgery has done for her.
As for the rest of Callie’s year she also ended up having her eye surgery in May, which also resulted in and infection. Thankfully this one we were able to take care with oral antibiotics. It seemed very major at the time, but looking back at her year it really was minor. In and among all the medical and trips to the clinic she still sees all her therapists. They still come to the home instead of sending her to school. Hopefully this fall she will go to the class room. She has an amazing team of therapists and teachers that work with her. One of her goals at the beginning of the school year was just to sit through one book. She is now doing 3 very well! Callie still loves to hear herself talk and look at her Best Friend in the Mirror. She goes everywhere with Callie.
As for Zak, he too has had a bit of a rough year. Thankfully it only started rough and the end was good. In March he got pneumonia and after doctoring and 3 trips to the ER he ended up in the hospital intubated (tube down his throat breathing for him). He had actually went to the clinic on a Monday afternoon and was doing great. Around 4:30-5:00 he started to cough and took a huge turn for the worst. We still really have no idea what happened to him. There are many theories, but no solid answers. He spent 4 days intubated and on day 5 we went home. I can honestly say I have never been so scared for my child’s life. I was a wreck! Thankfully he recovered well. It took him a few weeks to get all of his energy back. He did end up with a case of Bells Palsey from the infection. Slowly this went away too. By May he was doing well and at school he took a bit of a spill. Over the curb in his wheelchair and onto his face he landed, resulting in a broken nose. Once Zak got over the pain and shock he was back to himself. (Literally a few hours later.) He still has the scars to prove his battle. Zak has been such a happy BIG boy this year. He still loves his toys and all his friends at school. We are always hearing cute little stories about how he is hugging his friends at recess or trying to look up the little girls skirts. Everyone also tells us how wonderful he is to be around. He is truly a little blessing and so well mannered…most of the time. It has been 1 year now since he has had his new adaptive bike. We brought it to school for him so he could use it during gym. He has been doing amazing moving it and slowing learning to turn the wheel.
In between the visits we spent much of the summer in the pool in our back yard. The kids just loved it. Zak was swimming on his own with just an air tube around his chest. Callie loved to splash, but she was a bit more fussy on the temp of the water. Family and Friends were over most weekends swimming during the day and having a camp fire cook out at night. The new house has been amazing for the kids and allowed us to do so much more with them while having fun!
Big news for Shared Blessings in 2012. We officially became a Non-profit! We hosted an open house and two play groups at the end of the year. Santa was even able to join us for the last play group where the kids and families were able to get professional pictures taken! If you are interested in helping or donating to Shared Blessings in 2013 check out our website at http://sharedblessingskids.org/ or e-mail to admin@sharedblessingskids.org
In February Callie underwent tonsil and adenoid removal. We also asked for one of her ear tubes to come out as she was having issues along with a nasal scope. We just felt she was not breathing through her nose correctly. The surgery went well, however it did result in a septic blood infection which meant we had to give her IV antibiotics. This was our first treatment of IV meds at home. We also learned her nose was not open and were referred to other doctors. Getting to the correct doctor became a challenge and it was not until July when we connected with the correct person. After that appointment it was September when we got in for a second opinion. Although we still had not got anywhere on her nose all the tests that were ran resulted in a new finding. Her brain was growing, however her skull was not. It was 1 complete fused bone. She would need to have surgery on her skull to make it bigger before doing anything else. In October she underwent her first skull surgery along with neck surgery to remove a small bone. The surgery once again went well, however ended up in a terrible infection at the incision site of her neck. We were right back to IV antibiotics at home. This time it was not so simple. The line broke twice and we finally took it out and put her on oral antibiotics. This resulted in an allergic reaction to a medication she had been on many times in the past. Since the surgery she has been amazing. She is so happy, loves to crawl all over and look for her brother. When he is at school she crawls to his bedroom at the end of the hall to look for him, only to find he is not there. It is so much fun just to watch her move and smile. I truly cannot get enough of it. When I lay on the floor she loves to lay on my head and give me kisses, which is more like a big slobber, but it is so cute when it is your own child. I am just so amazed each and every day when that surgery has done for her.
As for the rest of Callie’s year she also ended up having her eye surgery in May, which also resulted in and infection. Thankfully this one we were able to take care with oral antibiotics. It seemed very major at the time, but looking back at her year it really was minor. In and among all the medical and trips to the clinic she still sees all her therapists. They still come to the home instead of sending her to school. Hopefully this fall she will go to the class room. She has an amazing team of therapists and teachers that work with her. One of her goals at the beginning of the school year was just to sit through one book. She is now doing 3 very well! Callie still loves to hear herself talk and look at her Best Friend in the Mirror. She goes everywhere with Callie.
As for Zak, he too has had a bit of a rough year. Thankfully it only started rough and the end was good. In March he got pneumonia and after doctoring and 3 trips to the ER he ended up in the hospital intubated (tube down his throat breathing for him). He had actually went to the clinic on a Monday afternoon and was doing great. Around 4:30-5:00 he started to cough and took a huge turn for the worst. We still really have no idea what happened to him. There are many theories, but no solid answers. He spent 4 days intubated and on day 5 we went home. I can honestly say I have never been so scared for my child’s life. I was a wreck! Thankfully he recovered well. It took him a few weeks to get all of his energy back. He did end up with a case of Bells Palsey from the infection. Slowly this went away too. By May he was doing well and at school he took a bit of a spill. Over the curb in his wheelchair and onto his face he landed, resulting in a broken nose. Once Zak got over the pain and shock he was back to himself. (Literally a few hours later.) He still has the scars to prove his battle. Zak has been such a happy BIG boy this year. He still loves his toys and all his friends at school. We are always hearing cute little stories about how he is hugging his friends at recess or trying to look up the little girls skirts. Everyone also tells us how wonderful he is to be around. He is truly a little blessing and so well mannered…most of the time. It has been 1 year now since he has had his new adaptive bike. We brought it to school for him so he could use it during gym. He has been doing amazing moving it and slowing learning to turn the wheel.
In between the visits we spent much of the summer in the pool in our back yard. The kids just loved it. Zak was swimming on his own with just an air tube around his chest. Callie loved to splash, but she was a bit more fussy on the temp of the water. Family and Friends were over most weekends swimming during the day and having a camp fire cook out at night. The new house has been amazing for the kids and allowed us to do so much more with them while having fun!
Big news for Shared Blessings in 2012. We officially became a Non-profit! We hosted an open house and two play groups at the end of the year. Santa was even able to join us for the last play group where the kids and families were able to get professional pictures taken! If you are interested in helping or donating to Shared Blessings in 2013 check out our website at http://sharedblessingskids.org/ or e-mail to admin@sharedblessingskids.org
Friday, December 7, 2012
All healed
Callie is doing great since her surgery and all the trips back and forth to Minnesota. Her follow up went great. All of the doctors were very happy with her progression. The neurosurgeon made the comment previously how serious her skull was, which made us very grateful to have found Gillette. Hearing this is something he would see in a medical journal it was so serious was a bit shocking, but really assures us this was defiantly the right thing to do. Since surgery and recovering from her infection she has become so much happier. She was always a very happy little girl, but it is so different now. She also has so much energy and is always giggling and moving. She stands so much better, is always crawling and wrestling with anyone on the floor (and she likes her brothers head the best).
With our follow up the infectious disease doctor (ID) decided to keep her on her IV medications one more week as she would be having heart surgery in January. We had a great plan in place until we got home from the 3 hour drive and her PICC line broke for the second time in 2 weeks. We were not even home more than 5 minutes. I truly just wanted to sit and cry. All I could think was there was no way I was driving back to Gillette and no one locally will replace it at night. After talking with Gillette I told them I was not going to drive back and she was just going to go without her medication for the night. They agreed this was ok and we could just talk with the doctor in the morning. They decided there was actually a greater risk of infection to replace the PICC again when she really did seem better so they had the local pediatrician pull her PICC line that day and we started on an oral antibiotic for another 10 days. I think Callie was so happy to have everyone stop messing with her and just get to her whole arm back.
It was confirmed this week that Callie will be having open heart surgery on January 7th. They will be fixing her ASD (whole in the heart from birth) along with her pulmonary stenosis (narrowed pulmonary valve – where the blood is pumped out to the lungs). She will spend 1 week in the PICU. This has been something we have been monitoring since birth. She has been stable since she was 1 year old, however she has a significant blockage that we knew it was only a matter of time before she would need this surgery. We have been waiting for her to get bigger and healthier. It has been quote the balancing act for the doctors to determine when the right time is. With the potential surgeries and sedations coming up in the next year it is time to get her heart fixed. We need to wait 2 months before moving on with any additional surgeries as she will be put on blood thinners through the heart surgery.
We do not have a set date yet, however we are thinking beginning of April she will have her second cranial surgery done. This one will be for her forehead. The purpose will be to allow for her brain to continue growing and make additional space. There is a possibility that from the movement of the bone and swelling there her surgery had on her eyes to lift the lids will “break” and need to be re-done. Only time will tell. The third cranial surgery would potentially be the mid-face. At this point it has been put on hold and the doctor will just follow her a year after the forehead surgery to determine if it will be necessary. Originally we thought all 3 would be required so that was great news to hear that maybe it won’t be needed.
We are still in the process of trying to find an ENT doctor that is familiar with the choanal atresia (Closed nasal passage) to start talking through that. We know it is still a year out so we have not spent to much energy trying to find someone. There is a lot going on and we remind ourselves one day at a time. Callie is showing huge progression and we are so proud of her!
Zak also saw the doctors at Gillette while we were there. We are excited that he does not have the Craniosynostosis (fused skull) like Callie! The cranial doctor would like to follow him annually though as his mid face is slightly pushed back and wants to be sure that it does not become an issue. He also saw an orthodontist while we were there and confirmed he will need some oral work done at some point as he does have a very small mouth. We will be seeing a dentist at Gillette and then will continue to follow an orthodontist. We also talked to the doctors about Zak’s continuing head banging. There are a few tests that they can run to rule things out before it is deemed as behavioral. We are still working through that to determine where to start and how we would like to move forward.
With our follow up the infectious disease doctor (ID) decided to keep her on her IV medications one more week as she would be having heart surgery in January. We had a great plan in place until we got home from the 3 hour drive and her PICC line broke for the second time in 2 weeks. We were not even home more than 5 minutes. I truly just wanted to sit and cry. All I could think was there was no way I was driving back to Gillette and no one locally will replace it at night. After talking with Gillette I told them I was not going to drive back and she was just going to go without her medication for the night. They agreed this was ok and we could just talk with the doctor in the morning. They decided there was actually a greater risk of infection to replace the PICC again when she really did seem better so they had the local pediatrician pull her PICC line that day and we started on an oral antibiotic for another 10 days. I think Callie was so happy to have everyone stop messing with her and just get to her whole arm back.
It was confirmed this week that Callie will be having open heart surgery on January 7th. They will be fixing her ASD (whole in the heart from birth) along with her pulmonary stenosis (narrowed pulmonary valve – where the blood is pumped out to the lungs). She will spend 1 week in the PICU. This has been something we have been monitoring since birth. She has been stable since she was 1 year old, however she has a significant blockage that we knew it was only a matter of time before she would need this surgery. We have been waiting for her to get bigger and healthier. It has been quote the balancing act for the doctors to determine when the right time is. With the potential surgeries and sedations coming up in the next year it is time to get her heart fixed. We need to wait 2 months before moving on with any additional surgeries as she will be put on blood thinners through the heart surgery.
We do not have a set date yet, however we are thinking beginning of April she will have her second cranial surgery done. This one will be for her forehead. The purpose will be to allow for her brain to continue growing and make additional space. There is a possibility that from the movement of the bone and swelling there her surgery had on her eyes to lift the lids will “break” and need to be re-done. Only time will tell. The third cranial surgery would potentially be the mid-face. At this point it has been put on hold and the doctor will just follow her a year after the forehead surgery to determine if it will be necessary. Originally we thought all 3 would be required so that was great news to hear that maybe it won’t be needed.
We are still in the process of trying to find an ENT doctor that is familiar with the choanal atresia (Closed nasal passage) to start talking through that. We know it is still a year out so we have not spent to much energy trying to find someone. There is a lot going on and we remind ourselves one day at a time. Callie is showing huge progression and we are so proud of her!
Zak also saw the doctors at Gillette while we were there. We are excited that he does not have the Craniosynostosis (fused skull) like Callie! The cranial doctor would like to follow him annually though as his mid face is slightly pushed back and wants to be sure that it does not become an issue. He also saw an orthodontist while we were there and confirmed he will need some oral work done at some point as he does have a very small mouth. We will be seeing a dentist at Gillette and then will continue to follow an orthodontist. We also talked to the doctors about Zak’s continuing head banging. There are a few tests that they can run to rule things out before it is deemed as behavioral. We are still working through that to determine where to start and how we would like to move forward.
Tuesday, November 13, 2012
Finally Home
Callie came home yesterday from Gillette. It was a very long weekend! Too long at that.
On Sunday she had her PICC line placed. They sedated her for it so it is considered a surgical procedure. The doctor said it went in good and they had no issues. The rest of Sunday was fairly uneventful for Callie. I must say though I was so impressed with the PICU doctor. We were moved to the main floor on Saturday so he no longer needed to follow up. He stopped by on Saturday and Sunday to check on Callie. He wanted to make sure she was doing well with the PICC and we were able to get it placed. He is by far one of the best doctors we have ever met! Yesterday we were able to get out in the afternoon after a whole long day of trying to discharge. She did come home on IV medication for 2 weeks. We have to go back for a follow up now in a few weeks
As for me, Sunday was very eventful! In the middle of the afternoon I went to run to the store to find out that my wallet was missing from my purse. I looked and looked and no luck. That is when I suspected someone stole it, however nothing else was missing so it did not make much sense. I looked online and realized there were several transactions that we did not do and that was when it sunk in that someone stole my wallet while we were down for the PICC line placement.
On Sunday she had her PICC line placed. They sedated her for it so it is considered a surgical procedure. The doctor said it went in good and they had no issues. The rest of Sunday was fairly uneventful for Callie. I must say though I was so impressed with the PICU doctor. We were moved to the main floor on Saturday so he no longer needed to follow up. He stopped by on Saturday and Sunday to check on Callie. He wanted to make sure she was doing well with the PICC and we were able to get it placed. He is by far one of the best doctors we have ever met! Yesterday we were able to get out in the afternoon after a whole long day of trying to discharge. She did come home on IV medication for 2 weeks. We have to go back for a follow up now in a few weeks
As for me, Sunday was very eventful! In the middle of the afternoon I went to run to the store to find out that my wallet was missing from my purse. I looked and looked and no luck. That is when I suspected someone stole it, however nothing else was missing so it did not make much sense. I looked online and realized there were several transactions that we did not do and that was when it sunk in that someone stole my wallet while we were down for the PICC line placement.
Saturday, November 10, 2012
Doing good.
Callie had a very good day. The antibiotics have kicked in and no fever! Last night before they put in her IV they gave her some meds to relax her so she basically spelt from 6-midnight and on and off until 1:00am. She had a few naps through the night but mostly played. I am guessing she was so happy just to feel good. By 6am she was in full swing active mode! For the most part she has done well playing in the crib, which did surprise me a bit. I figured she would want more room to move. We were told during morning rounds that we would be moving to the floor today. Everyone knows how we feel about a main floor unit! Well at 3:00 we were moved.
This is our first experience on the floor so I was going into it with an open mind knowing how amazing everything has been up to this point. During admission onto the main unit Callie lost her IV. They were not able to flush it at all. We thought it was 'saved' however it was not. This brought up a whole new factor. The discussion that has been going on all day. Will Callie need to go home on IV medication? Results from the cultures are not back yet so we really just don't know for certain. If she goes home on IV medication she needs a PIC line (A peripherally inserted central catheter is a form of intravenous access that can be used for a prolonged period of time). If the infection is just a tissue infection she may not need to be on IV medication. So the big question is poke Callie who knows how many more times just to get an IV or place a PIC line in the morning (under sedation). The ICU doctor said wait until morning and the floor doctor wanted to put in an IV. Thankfully the ICU doctor that came on for night rotation came to the floor to see us as he heard they lost the IV (which he placed the night before). He was also the day shift doctor that followed Callie the whole week after her surgery. We talked through the issue and he agreed that he would wait until morning as it just is not worth poking Callie more. He talked to the other staff and no IV was placed. I have so much respect for this doctor. He truly understands our family, abilities to care for Callie and most of all he listens to what we want. After that was all dealt with all I have to say about the nurse we had is I hope the night one is good and I can get some sleep.
As for the PIC line it will be placed at 8am tomorrow. We are just assuming that it is going to be needed. We were really hoping to go home tomorrow, however by the sounds of it we may not be able to get IV medication on a weekend so we may be stuck until Monday. To make it even better both kids have to be here on Tuesday for appointments.
By the end of the day - well Callie is back to her old self. Full of spunk!
So many people have asked how I am doing as Chris is at home with Zak for this trip. Thankfully I do have help though as Grandma Kathy came along. Riding in the car alone with Callie was not an option. First thank you for thinking of me and asking, however I will tell you what most Mothers do. I am doing good. You go on peer love for your child and do what you need to do given the moment. Callie needs me the most right now and I need to be strong and supportive for her. I will say though I cannot wait for our life to get back to normal and get one good night of sleep as it has been a very long two weeks. I am also looking forward to real food as hospital food just does not cut it and a shake made with a blender (my morning breakfast shakes just are not the same).
Praying for some answers on all the cultures tonight along with Callie to continue with her healing as she is going in the right direction now.
This is our first experience on the floor so I was going into it with an open mind knowing how amazing everything has been up to this point. During admission onto the main unit Callie lost her IV. They were not able to flush it at all. We thought it was 'saved' however it was not. This brought up a whole new factor. The discussion that has been going on all day. Will Callie need to go home on IV medication? Results from the cultures are not back yet so we really just don't know for certain. If she goes home on IV medication she needs a PIC line (A peripherally inserted central catheter is a form of intravenous access that can be used for a prolonged period of time). If the infection is just a tissue infection she may not need to be on IV medication. So the big question is poke Callie who knows how many more times just to get an IV or place a PIC line in the morning (under sedation). The ICU doctor said wait until morning and the floor doctor wanted to put in an IV. Thankfully the ICU doctor that came on for night rotation came to the floor to see us as he heard they lost the IV (which he placed the night before). He was also the day shift doctor that followed Callie the whole week after her surgery. We talked through the issue and he agreed that he would wait until morning as it just is not worth poking Callie more. He talked to the other staff and no IV was placed. I have so much respect for this doctor. He truly understands our family, abilities to care for Callie and most of all he listens to what we want. After that was all dealt with all I have to say about the nurse we had is I hope the night one is good and I can get some sleep.
As for the PIC line it will be placed at 8am tomorrow. We are just assuming that it is going to be needed. We were really hoping to go home tomorrow, however by the sounds of it we may not be able to get IV medication on a weekend so we may be stuck until Monday. To make it even better both kids have to be here on Tuesday for appointments.
By the end of the day - well Callie is back to her old self. Full of spunk!
So many people have asked how I am doing as Chris is at home with Zak for this trip. Thankfully I do have help though as Grandma Kathy came along. Riding in the car alone with Callie was not an option. First thank you for thinking of me and asking, however I will tell you what most Mothers do. I am doing good. You go on peer love for your child and do what you need to do given the moment. Callie needs me the most right now and I need to be strong and supportive for her. I will say though I cannot wait for our life to get back to normal and get one good night of sleep as it has been a very long two weeks. I am also looking forward to real food as hospital food just does not cut it and a shake made with a blender (my morning breakfast shakes just are not the same).
Praying for some answers on all the cultures tonight along with Callie to continue with her healing as she is going in the right direction now.
Friday, November 9, 2012
Infection
Callie was admitted to Gillette Children's today for an infection. On Thursday she went to our pediatrician as the incision on the back of her neck was infected. The doctor ran a blood test however the incision was not draining anything to even get a culture. They did give her an antibiotic injection to hopefully get ahead until we received the results. Over night she spiked a fever of 104 and the incision started to drain. After Tylenol and ibuprofen the fever came down to 101. I called the pediatrician again to update them, however the results were not back yet. I also called Gillette just to let them know what was going on. After talking with the Gillette doctors this morning they decided the best thing was for us to come to MN and get admitted to the ICU where they know her best (as it relates to this surgery). We arrived in MN around 4:00pm. They were able to get a culture of her neck right away. The ICU doctor was going to put in a PIC line right away however anesthesiology would not approve the sedation as she has not been with out food long enough. We had to do an IV. The reason for wanting the PIC line was we could at least go home with that and do IV medication at home. They did get the IV in and were able to draw blood from it right away. All the labs have been sent in. They do have her on the IV antibiotics now as we wait for the results to come in. We are hoping tomorrow to get some answers.
Please say prayers for a speedy recovery so we are able to go home.
Please say prayers for a speedy recovery so we are able to go home.
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