Callie was into the Clinic today to have a CT and MRI to try and figure out what is going on with her airway and respiratory issues. She has been on 1-3Litters of Oxygen while she is sleeping and also having apnea spells. We were hoping to leave with some answers. Unfortunately, we do not have any answers, but more questions.
Callie was prepped and brought back for her MRI, shortly in she was having issues with her breathing. The doctor determined this was not a safe procedure for her and she would need to be intubated to complete the tests safely for her. They were not going to do this today as it is more invasive for her. We knew she was having issues, but did not realize to this extent. it was a moment of realization what we are really dealing with. Callie woke from sedation with no issues and has been her typical self today. Between the intensivist and the neurologist it was determined she should have the same two tests, but also a sleep study. She will go back in on Thursday morning to have the CT and MRI repeated. We have not heard when the Sleep study will be yet, we are hoping for next week. For all of the tests she will be admitted to the Peds ICU as she is a High Risk Patient.
I will try my best to post an update on Thursday as soon as we know something.
On the Home front.. with the new house. The insulation is complete. The dry wall was delivered today! I will post some pictures soon! We have picked out Cabinets, flooring and paint too. It is all coming together.
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