11 REASONS WHY WE ROCK!

Zak’s surgery went very well. He was his typical self and slept for almost a week straight with a few times of being up. We noticed a huge change in him from the surgery. He significantly decreased the amount of head banging that he did. He was down to about 25% of the time. He typically is always a happy kid but it was even better. We had some follow up appointments for the kids in MN so we decided to spend an extra night at took the kids to the Zoo, Mall of America, Sea Life and a nice dinner. Typically Zak would not like loud noises and it did not bother him one bit after the surgery. It was really obvious on Vacation how great he was doing. For some reason though it was just too good to be true and starting this past Wednesday we say a change. Hoping it was just him getting ill from all the new germs and people that is what I chalked it up to. Unfortunately many of us thought the same thing and what if it is his newly placed shunt? Monday afternoon I called the neurosurgeon and they started him on a new medication and want to see us back on Wednesday for imaging and to see the doctor. Thankfully I know we are in wonderful hands with some of the best doctors we could ever ask for!

One of my friends posted this on Facebook. I have seen it before but sometimes it really just hits home. Right when you think you are getting somewhere it seems like something always pops up so this was a good reminder.
11 REASONS WHY WE ROCK!
1. Because we never thought that “doing it all” would means doing this much. But we do it all, and then some.
2. Because we’ve discovered patience we never knew we had.
3. Because we are willing to do something 10 times, 1,000 times if that’s what it takes for out kids to learn something new.
4. Because we have heard the doctors tell us the worst, and we’ve refused to believe them.
5. Because we have bad days and breakdowns and bawl fests, then we pick ourselves up and keep right on going.
6. Because we manage to get ourselves together and out the door looking pretty damn good. Heck, we even make sweatpants look active.
7. Because we are strong. Who knew we could be this strong?
8. Because we aren’t just mothers, fathers, wives, husbands, cleaners, chauffeurs, cooks and people who work. We are also physical therapists, speech therapists, occupational therapists, teachers, nurses, researchers, coaches and cheerleaders.
9. Because we understand our kids better than anyone else does – even if they can’t talk or gesture or look us in the eye. We know. We just know.
10. Because just when it seems like things are going ok they’re suddenly not, but we deal. We deal even when it seems like our heads or hearts might explode
11. Because when we look at our kids we just see great kids. Not kids with labels!