Answers

We finally have some answers and direction for Callie. We met with a Pulmonologist in Madison. She was amazing! We were very grateful to have such a wonderful doctor. She spent so much time with us and really listened to what we had to say. We spent almost 3 hours with her. She went through Callie's whole time line of illness and surgeries. She believes Callie is aspirating from her reflux in her belly, which is why she is on oxygen as the fluids are going into her lungs. She suggested we have a swallow study done before we feed her orally any more. That is scheduled for this month. We also slowed down the amount of food she gets into her belly at one time to hopefully prevent the amount of reflux she will have. We are still waiting to get a final game plan, but hopefully these changes will make a difference.
She has also been doing great with her BiPAP. She slept a full 12 hours on Monday night!! She leaves her mask on most of the time. Once she is sleeping we are fine. It has made a huge difference for her.

Zak had a sleepy week. We are thinking he had some kind of stomach bug. He slept from Sunday Night until Tuesday Morning. He was only up for about an hour. Today was the first day back to school from not feeling well.