Eatting Again!

Callie can eat orally again!! YEAH CALLIE!!  We went to Marshfield today as the pulmonologist from Madison believes Callie is aspirating. We think it is from reflux, but we needed to determine also if Callie is having issues swallowing. She had her swallow study which looked wonderful. She ate food and drank from the sippy and passed with flying colors! She had her first dinner in a month tonight. She has been strictly tube fed since we were in Madison. So what does this mean now? Well we have changed how she gets her tube feeds. They are much slower therefore take an hour and a half for a "meal". She seems to have less reflux. Her oxygen levels have improved. She even has made it a few nights with out any oxygen. A tank that once lasted two weeks is now lasting more than a month. She continues to wear her BiPAP (sleep machine) to help with her apnea. She goes to the clinic on April 8th for an X-ray to see if her lungs are clearing up at all. We believe they are. She typically sleeps 8-10 hours straight now. It is amazing.

As for Zak, well the poor guy is sick again. He has gunk coming out of everywhere. He was at the clinic yesterday and has a nasty ear infection. Every Time he coughs or sneezes snot comes along with it. He ended up coming home from school today and I am guessing he will be home again tomorrow. Poor kido. They were suppose to go on a field trip at school today and celebrate his birthday, he had to miss all of it :( They will celebrate when he returns after spring break.
Last week his therapist called me with wonderful news! He was walking in his gait trainer (walker). He has a drop out seat in it so as you become more skilled it can be removed. For the first time Zak had it removed and did quite well. I was so proud of him. We now have the same style walker at home too. I cannot wait to move and have a better floor for him to roll on. It will be wonderful to see him getting around.